Healing unequal access to care

Angelina Jolie at the MCCC

Maddox Chivan Children’s Center

Access to HIV/AIDS treatment and support to children infected or affected by HIV

The Maddox Chivan Children’s Center (MCCC or the ‘Maddox’) was born out of a chance encounter between actress and director Angelina Jolie and CHC co-founder Dr. Anne Goldfeld on a flight to Cambodia in July 2004. In Phnom Penh, the women together visited a dilapidated TB and AIDS ward for adults dying of TB and AIDS in a time when HIV treatment was not accessible by most in the country. Together they saw children, with nowhere else to go, playing on dirty hospital floors near emaciated parents and other patients who were coughing and dying of HIV and TB. This visit led to a partnership and to the creation of the Maddox Chivan Children’s Center (MCCC) dedicated to helping children infected with HIV, and to help children who while uninfected with HIV themselves, lived in families decimated by AIDS.

Whether HIV-infected or not, children from families touched by AIDS invariably had missed months or years of school due to their own illness or because they were caring for sick parents. Most of the children had lost their father to AIDS, and were living with a mother sick with HIV/AIDS and a younger sibling who had been infected with HIV during pregnancy. Some as young as 7 or 8 years old were serving as their mother’s primary caregiver, scavenging garbage or begging for food for the family. All of the children faced stigma because of their own or their family’s HIV status.

The women saw an opportunity, and the Maddox was established as a daily outpatient center in Phnom Penh in 2006 to address the their unmet needs focusing first on medicine and nutrition. The Maddox became one of the first HIV treatment sites for children in Cambodia and was the first multisectoral program providing HIV treatment and medical counseling and care tailored to the age of the child who was starting lifelong HIV treatment. Hot lunch is offered to all present from toddlers to teens including parents and 2 snacks a day. Education is focused on trying to catch the child up to grade level and to at least to a 6th grade level. 2000+ children and teens have benefited from the Maddox, and countless others have benefited from the Maddox medical counseling approaches introduced to the National HIV Program at the Sullivan Center at the Khmer Soviet Friendship Hospital and the Cambodian National HIV (NCHADS) clinic in Phnom Penh.

Impact of the Maddox Chivan Children’s Center

  1. HIV treatment: The Maddox was one of the first sites in Cambodia to provide HIV drugs to children. We chose to train physicians from the largest public hospital in Cambodia, the Khmer Soviet Friendship Hospital, in pediatric HIV care who worked with the CHC physician at the Maddox Center, so they could open a children’s HIV clinic at their hospital which cared for the poorest patients in Phnom Penh. HIV care was later transferred to the new Sullivan Pediatric HIV Center at the Khmer Soviet Hospital in 2009.

  2. Age-specific medical counseling for HIV: A game-changing age-specific medical counseling approach and tool was developed by Marie-Pierre Sanchez-Die, the Maddox’s first director, with the Maddox team. This counseling manual used by the counselors to explain to children with HIV/AIDS their illness, helped children understand the necessity of daily medications in an age-appropriate manner as they transitioned from small child to teenager to aid them in developing the lifelong and lifesaving habit of adherence to the HIV medications.

  3. A safe space: Both HIV infected and non-infected children from families roiled by AIDS faced AIDS-related stigma, and the MCCC became a safe sanctuary where these children could be just be kids with other children who were in similar circumstances.

  4. Getting kids to grade level: The Maddox provides supplementary education in Khmer language, math, English, and computer topics to bring children up to grade level commensurate with their age. There are primary and middle school levels and a and a pre-school/nursury group. And, there are English and computer classes and activities for high school students

  5. Horses, music, and dance, etc: The Maddox also has provided enrichment opportunities to children for enjoyment, to nurture talents, and to develop new skills with instruction in horseback riding, Khmer dance, and with support of the US-based NGO ‘Recorder’s of Hope’ over the years, music lessons (piano, recorder, violin). The horseback riding program that was conducted with the Cambodian Equestrian Association was not only an incredibly fun and therapeutic activity for Maddox kids, indeed several of the children became expert equestrians, meeting the King, and became members of the Cambodian Olympic Team. Some traveled to ASEAN competitions throughout southeast Asia. And one rider has become a horse expert and is working at a horse club in southern Cambodia.

  6. Nutrition: Most, if not all, of the attendees of the Maddox, especially in its early years, came from families with great food insecurity. Thus, providing food became an integral Maddox intervention from its first days. A hot lunch is provided daily (Monday through Friday) for children and any accompanying adults as well as a morning and afternoon snack.

  7. Psychosocial Needs: A counselor is available for addressing difficult behaviors of children and to assess and support families in times of social and psychological stress. As children have grown into teens and young adults, those who are HIV infected face the big challenge of navigating the transition to adulthood with a lifelong and contagious infection that needs daily medication. The MCCC has been focused on developing interventions to prepare these young adults to manage this transition.

Ye How

Sorita

Ye How and Sorita: a new chance

When Ye How was age 6 in 2006 his mother died of AIDS and he was hospitalized in poor condition with advanced AIDS and tuberculosis weighing 25 lbs (TB) (left panel). The hospital referred him to the Maddox, and when the team met him in the hospital, he kept saying he wanted to be with his mother in heaven. The Maddox treated his TB and he was able to return home and then began his AIDS drugs. Cured of TB and with his HIV disease successfully under treatment with HIV drugs at the Maddox (middle panel). The right panel shows Ye How one year later in his first grade math class at the Maddox. Ye How continued to attend the MCCC through his childhood to complement school and as a teenager went to a vocational high school. He now at age 25 works in a manufacturing job in Phnom Penh. Story and pictures are shared with permission as are all photos on this website.

At age 8 Sorita lost her mother to AIDS and ended up living with her grandmother. She developed a fever and was found to have advanced AIDS and was refusing to eat in the hospital in January 2008 (left panel). She was referred to the MCCC team who brought her food that she said she would eat and she was initiated on drugs for HIV at the MCCC, and 6 months later in July 2008 she was doing well and attending the MCCC (Middle panel). Stable on her HIV treatment and succeeding in her schoolwork, Sorita age 12 in 2012 is shown at the MCCC with the center’s mascot dog, Miki (right panel). Sorita, now age 26, works as an assistant teacher in a private school in Phnom Penh. Story and pictures are shared with permission, as are all photos on this website.

CHILDREN LIVING WITH HIV/AIDS

A key to a healthy life with HIV infection, whether as an adult or as a child, includes learning how to take lifesaving and lifelong HIV treatment. It is important to help children understand their illness and how the drugs work to keep them healthy. Towards this goal, the founding director of the Maddox, Marie-Pierre Sanchez-Die (left photo below), developed a pioneering age-specific medical counseling program and manual with the team. An example of counseling cards that the counselors use for young children is shown below (middle photo). The counselor uses the cards to reinforce the importance of taking daily medication to treat HIV when patients go to the clinic to receive a refill of their HIV drugs..

Above left: Marie-Pierre Sanchez-Die with children attending the MCCC, who was the founding director of the MCCC from 2006-2010. Above in the middle panel are 6 pages from the MCCC HIV Counseling Manual for Children. These panels are for young children when they are introduced to HIV using Miki, the MCCC mascot dog as a surrogate for the child. See middle photo above starting in its upper left corner: (1) Miki doesn’t feel well and can’t play, and then moving to the middle upper panel of the photo (2)Miki goes to see the doctor who does a blood test and finds a cause of the illness. In the right upper panel (3) Miki then goes to the counselor to understand her illness and then bottom left panel (4) Miki goes back to the doctor to get treatment. In the bottom middle panel (5), the HIV drugs are depicted as superheroes who will kick out the virus/sickness inside of Miki. And in the lower left panel (6) Miki to feel better and to able to play with her friends. The right photo is an MCCC counselor who will go over the manual with the child and their caregiver to reinforce their understanding of and adherence to the HIV drugs.

DAILY LIFE AT THE MADDOX CHIVAN CHILDREN’S CENTER

library reading time

Computer class for middle schoolers

Best friends meeting on the playground (photos above and to the right).

Natalie Sereda from Recorders of Hope (at piano) teaching the pre-school children a new song.

Khmer lesson

Khmer lesson

English lesson for kids in primary school

The entrance to the MCCC early in the morning before most of the children arrive

Learning keyboard

Pre-school class

playing soccer in the MCCC yard

Climbing on the jungle gym

Mr. Din Sokkun, the MCCC Director since 2011 with Sorita.

HEALING THE WORLD ONE LIFE AT A TIME

Recorder lessons

Lunchtime at the MCCC

Maddox Riders meet King Norodom Siamoni (the two children on the King’s left).

Three of the 6 equestrians at the ASEAN Games were from the Maddox (the three on the left).

Maddox rider Sin Narith at an international competition in Bangkok. See him also in the middle picture to the left where he is third from the left.